I’m worried. I don’t have the answers at this point. I don’t think they’re going to kill Medicaid or the ACA but they may seriously cut or change it, such as giving states capped block grants for Medicaid, which would end guaranteed benefits, which a lot of people living with HIV rely on. I’m also worried about cuts to the CDC, the NIH and Ryan White. The Trump administration will propose these things and it’s up to Congress to decide them, so we’re going to have to take our voice and our message to Capitol Hill. Reach out via email, phone or office visit to your congressmembers to tell them why HIV treatment and prevention is so important to you. And definitely reach out to your local AIDS services organization or a similar group to see if you can plug into their federal- and state-level advocacy efforts. I’m expecting the worst—and we just have to work together for the better.
HIV doesn’t cause AIDS and other conspiracies RFK Jr. endorsed
“This misinformation is dangerous and clearly wrong,” noted Carl Schmid, executive director for the HIV+Hepatitis Policy Institute in Washington D.C., in an email. “How can [Kennedy] dismiss the millions of people in Africa who have been impacted by HIV? Does he believe they used poppers? It is nonsense and harmful.” Schmid applauded Trump for work during his first term on an initiative aimed at ending HIV. “We know that [Trump] understands what causes HIV and look forward to the opportunity to sit down with RFK Jr., should he be confirmed by the Senate to be HHS Secretary,” he said.
HIV prevention pills should be free, but insurers are still charging
Tens of thousands of people most vulnerable to contracting HIV are forced to pay for medication to prevent the virus, despite federal requirements guaranteeing free access to treatment that is critical to ending the HIV/AIDS epidemic in the United States, according to multiple studies and interviews with medical professionals, activists and patients.
Unraveling the urgent, unspoken struggle for accessible HIV prevention
Despite the mandate, patients still face bills or prior authorizations, which means that approval must be obtained from their insurance company before starting the medication; otherwise, the medication will not be covered. Up to a third of commercially insured PrEP users paid out-of-pocket for lab testing even after the 2021 mandate. The recourse for patients facing charges when these preventive services should be free is limited. They can either try to push back on their health plan, rely on their provider to do so, or submit a complaint to agencies like their state’s Office of Attorney General or the Division of Insurance. “It is out of control,” Carl Schmid, executive director of the HIV+Hepatitis Policy Institute, tells Uncloseted Media/Fierce Healthcare. “We need enforcement.”
HHS Removes Organ Transplant Limitations For Patients With HIV
“Because of years of research and scientific advancements, we now have the tools to prevent and treat HIV and keep people living healthy and long lives,” Carl Schmid, executive director of HIV+Hepatitis Policy Institute, said in a Tuesday statement on World AIDS Day, which is Dec. 1. “Now is not the time to retreat on our commitment to protecting the health of our nation. President Trump initiated the Ending the HIV Epidemic initiative in his first term, which was sustained by President Biden and his administration. Now we look forward to that same commitment from President Trump as he and his new administration seek to make our country healthier, bolster prevention, and address chronic diseases.”