Testimony, Comments, & Letters

Employers and issuers using “non-essential health benefit” prescription drug vendors

The HIV+Hepatitis Policy Institute found over 150 employers and issuers utilizing outside vendors as part of their prescription drug benefit for their employees that designate certain drugs as “non-essential health benefits” to evade ACA cost-sharing requirements. Most of them implement copay maximizers, under which they keep all copay assistance from drug manufacturers rather than applying it to the patient’s out-of-pocket costs. Others use an alternative funding program, in which carved out drugs are sourced from patient assistance programs meant for the uninsured or by drug importation.

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63 HIV organizations request for updated USPSTF PrEP guidance & issuer compliance

We, the undersigned 62 organizations dedicated to the fight to end HIV, write to request CMS issue updated guidance in order to ensure issuer compliance with the most recent, updated United States Preventive Services Task Force (USPSTF) recommendation for HIV Pre-Exposure Prophylaxis (PrEP). As community-based organizations, advocacy groups, clinical providers, and public health practitioners working with people and communities affected by HIV, we know the urgency of ensuring broad and equitable access to PrEP free of insurance barriers.

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Oppose domestic HIV programs cuts of over $541 million in Labor HHS approps. bill

There are currently over 1.2 million people living with HIV in the United States and approximately 32,000 new diagnoses annually, with only 65 percent of people virally suppressed and only 36 percent of the people who would benefit from PrEP on it. While we are making progress, racial, ethnic, gender, and geographic disparities persist, and continued investments are needed to reduce new infections and bring more people into care and treatment.

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Public Comments on Potential Viral Hepatitis Quality Measures in Medicaid

We support the adoption of quality measures for hepatitis B and hepatitis C in Medicaid. We support the adoption of hepatitis C screening and treatment initiation measures within state Medicaid programs. We urge HHS to consider quality measures for hepatitis B screening and linkage to care, as well as for hepatitis C sustained virological response (SVR) for testing and proposal to the Medicaid Adult Core Set. We support the implementation of hepatitis B screening, hepatitis C screening, and hepatitis C treatment initiation quality measures within state Medicaid programs.

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Senate testimony on FY25 appropriations for HIV and hepatitis programs

Our nation can eliminate both HIV and viral hepatitis, but without investing additional resources to accelerate our efforts, we will continue to fall short of these ambitious goals. Increased investment–and certainly not cuts–in surveillance, education, prevention, and care and treatment will lead to further progress in reducing HIV and viral hepatitis, which include taking a syndemic approach to achieve maximum impact.

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