Testimony, Comments, & Letters

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Solutions to improve COVID-19 vaccine access & protect intellectual property

Jun 8, 2022

On behalf of the patients we serve who are living with HIV, hepatitis, cancer, lupus, autoimmune diseases, and other serious chronic and complex conditions, we write to share recommendations to address global COVID-19 vaccine equity and access barriers. While we commend the World Trade Organization (WTO) and the Office of the United States Trade Representative for prioritizing efforts to improve vaccine access, it must not come at the expense of waiving intellectual property (IP) protections.  To do so would have unprecedented effects on future medical development.

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Testimony in support of increased funding for domestic HIV and hepatitis programs in the House FY 2023 Labor, HHS spending bill

May 24, 2022

On behalf of the HIV+Hepatitis Policy Institute, we respectfully submit this testimony in support of increased funding for domestic HIV and hepatitis programs in the FY 2023 Labor, HHS spending bill. Our nation is on a path to eliminating two infectious diseases, HIV and viral hepatitis, but we need increased funding to accelerate our efforts particularly in communities and populations disproportionately impacted. Increased investment in surveillance, education, prevention, and care and treatment will ensure we continue to address HIV and viral hepatitis, including taking a syndemic approach to achieve maximum impact. The programs and funding increases detailed below are pivotal to our nation’s ability to end both HIV and hepatitis.

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105 groups comment on the role of PBMs on patient access and affordability of prescription drugs

May 24, 2022

We, the undersigned 105 organizations, on behalf of millions of patients and Americans who live with complex conditions such as HIV, autoimmune diseases, cancer, diabetes, kidney disease, lupus, hemophilia, mental illness, and hepatitis write in response to the Federal Trade Commission (FTC) request for public comment on the impact of pharmacy benefit manager (PBM) practices on consumers.  Specifically, we offer comments on how PBMs impact the health and well-being of patients who receive their health coverage through the private insurance market.  While most people think insurers make the majority of decisions regarding health coverage and affordability, when it comes to prescription drugs, it is the PBMs that drive much of the decisions as to what medications a beneficiary can access and how much they pay for them.  We commend the FTC for its leadership to investigate the impact that PBM practices have on the patient communities we serve and believe this represents a critical step forward to improving patient access and affordability to necessary medications.

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Testimony on FY 2023 appropriations for HIV and hepatitis programs

May 10, 2022

On behalf of the HIV+Hepatitis Policy Institute, we respectfully submit this testimony in support of increased funding for domestic HIV and hepatitis programs in the FY 2023 Labor, HHS spending bill. The HIV+Hepatitis Policy Institute is a leading HIV and hepatitis policy organization promoting quality and affordable healthcare for people living with or at risk of HIV, hepatitis, and other serious and chronic health conditions.

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Letter in support of HIV and hepatitis provisions in the “Restoring Hope for Mental Health and Well-Being Act of 2022” (H.R. 7666)

May 10, 2022

The HIV+Hepatitis Policy Institute, a national, non-profit organization whose mission is to promote quality and affordable healthcare for people living with or at risk of HIV, hepatitis, and other serious and chronic health conditions, is pleased to offer comments in support of the HIV and viral hepatitis provisions included in the “Restoring Hope for Mental Health and Well-Being Act of 2022” (HR 7666). This bipartisan bill introduced by Chairman Frank Pallone and Ranking Member Cathy McMorris Rodgers reauthorizes key Substance Abuse and Mental Health Services Administration (SAMHSA) and Health Resources and Services Administration (HRSA) programs to address the national mental health and substance use disorder crises. The subcommittee is expected to consider the bill tomorrow.

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